#letmehear – rootedbythewater.blog

Testing 1…2…3…

August 18, 2024August 18, 2024Leave a Comment

My Advanced Bionics Marvel Cochlear Implant processor.

Story of life! Seriously, it sort of is. Here’s the thing, almost one week ago I had some big adjustments to my cochlear plant. For some reason over the years, four of my16 implanted electrodes had been turned off for various reasons. In my 18 years of implantation with my cochlear implant, I’ve had differing levels of success or lack there of. If you know, you know 😂 (You can count on me to keep it real.) I love my current Audiology Center called Lakeside Audiology in Fort Mill, SC. I started going there about five years ago after much frustration at my previous hearing center. The team that works with me at Lakeside Audiology sent my files to Advanced Bionics AB (that makes the type of implant I have) in California to have a specialist there review and make recommendations for improvement. Since I also have low vision due to optic nerves issues, I rely heavily on my cochlear implant to help me hear. The AB Specialist made some recommendations to implement. Last Monday when I went for my appointment, three electrodes were turned on that were previously off. I noticed a difference although I couldn’t pinpoint what it was. My levels of pitches were adjusted as well and it was louder. I did better hearing the sounds in the sound booth. I went home, determined to work with the new changes. Little did I know I’d be back four days later.

Tuesday and Wednesday were a blur of activities and I didn’t have time to really pay attention or work with the new adjustments. I did pick up some things I did not notice before but it also really grated on my nerves. Just try to think about it; Each of these electrodes stimulate my auditory nerve allowing me to hear different pitches. Three more had been turned on so my brain was being more stimulated. Thursday I finally had a slower paced day and that’s when I realized it was just too loud for me. I don’t complain but my nerves were “strung” and I was tired from all the effort and simulation. I e mailed the Audiologist and Ron called. I was able to go in Friday to have the levels turned down a bit. Little steps are sometimes needed to make progress. I kept the electrodes on, just had some volume turned down. Now I’m back to listening activities with Sound Success, Word Success and iAngelsound.

I have noticed maybe a little improvement. The thing is, I’m never consistent. I asked my Audi why I have such issues with the rate of speech and she said it is due to the type of hearing loss I have. Neuro sensory relating to my lovely nerves. Seems everything boils down to nerve issues. (Vision and hearing issues) It seems to me that doctors would come up with something to help. What about oxygen therapy treatments? Dietary changes? Supplementation? Come on! I did ask a previous primary Dr. his thoughts on dietary changes to help with nerve issues. His response? “That would take a long time to work. “ That might be true, but “Pop a pill” isn’t the answer to everything. Just being honest here.

Back to my story. On Saturday Mom and I went to our Lit & Latte Book Club that we attend once a month. The ladies went around the table sharing prayer requests before discussing this month’s book selection. I DID understand a little bit during the sharing of prayer requests. Just bits and pieces, some voices better than others, but everyone talked one at a time. Once we began the book discussion I was lost in overlapping chatter and laughter. Mom did help me to follow some of the discussion. At one point I kind of “zoned out”. I told Mom later it’s kind of like going to the gym. You go and get your workout in. When you get tired you leave and it’s over until next time. Not so with hearing rehabilitation. I go and listen intently, but once I’ve had enough, I still have to continue listening. I do have friends with cochlear implants who just take the processor off to give themselves a break but they can see way better than me. Mom and I stopped at a few stores on the way home. When I did finally get home I was beyond exhausted. I laid down at 4 pm and took a two and a half hour nap. Whew!

I’m determined to work with the new changes and God willing my brain will make the connections and comprehension will come. Until then, I will continue to test myself with the various exercises. I was telling the audiologist that it’s a challenge while doing the iAngelsound app as I have to zoom in to see the word selection and the repeat button is over to the side. (On iPad screen) Sometimes I don’t see the word right but hear the sound. Oh Lord have mercy. It’s like a never ending rollercoaster that you want “off of” 😳Thankfully at home I can function fine without the processor although I prefer to have it on. I don’t want to miss “life” happening around me. So the testing goes on. My husband is so used to me having my processor on that when I do take it off and he starts talking, I’m like….. “I don’t have my processor on. Let me put it back on. Okay what did you say?” Yes… that’s an every day thing.

Just a little glimpse at my world. Technology is a marvel. Sometimes I love it and sometimes I want to throw it out the door but I will keep working with it. Eighteen years and counting. God is good and faithful. So thankful for the resilience to keep going, stay real and keep smiling. All for His Glory.

Www.shannonkhinson.com

Socks or no socks?

July 11, 2024Leave a Comment

Another “off the wall” blog post ~ This happened today and it’s too funny not to share. And who knows…. My sense of fashion might be off. What do you think?

This afternoon I had an audiologist appointment to make a couple of changes to my Advanced Bionics Marvel (cochlear implant) processor. A side note~ I am so thankful for Lakeside Audiology in Fort Mill, SC. They go over and beyond to help me hear my best. Advanced Bionics is the cochlear implant company I chose years ago and they are excellent. My Audiologist shared my file with the AB Audiologist and some slight changes were recommended Today was the day of my appointment to make those changes.

Two friends and I had a long lunch before my appointment, then one dropped me off and my husband Ron met me there. Ron walked in the Audiologist office wearing gray/black shorts, black athletic socks and black flip flops. I thought to myself, “Oh Goodness!” We talked for a few minutes then I said ,”Ron black socks and black flip flops look like something an old judge would wear. He took one sock off and I said, “No socks look better”. I asked the lady across from us what she thought, but she didn’t speak English. So he ended up taking the black socks off. I told him if they didn’t stink I would put them in my purse for him. That foreign lady probably thought we were the strangest thing.

The Audiologist called me back to the office and Ron came along with me. She made a couple of changes then I went in the sound booth to listen to various beeps. When I came out, we talked for a short time to test out the changes. I am hearing Ron better. We then told her about the socks incident and she was cracking up. We are the real deal, no pretense! I’m still laughing.

When we got home I realized his socks were still in my purse. I told him to put one back on so I could take a picture. He might suspect it will appear in a blog, but I just won’t send it to him. I’m curious though on the socks or no socks question. Our son can pull it off but he is in his mid twenties and his leg aren’t that white. There’s your chuckle for the day. Hope everyone has a wonderful rest of the week and weekend.
Www.shannonkhinson.com

Adventure on the water

May 22, 20234 Comments

Yesterday I returned home from a week away at the beach with some great friends. While the whole week was wonderful, our last full day was by far my favorite. Leasa and Lisa Jane went to the beach but Tami and I went kayaking in the canal and waterway.

There is something about kayaking that soothes me. I find myself so relaxed out on the water. It’s like I was made to be out there. THe last time I went kayaking was a couple of years ago. I have never gone wearing my cochlear implant processor. My Advanced Bionics Marvel processor is far too expensive to risk losing in the water. However I packed one of my old processors that has old technology. Since I can still hear some with it, I brought it along and I’m so glad I did.

Let me just say, the sounds of the water and wind were like soothing music. I listened as the paddle sliced through the water and came up dripping before slicing through again with the next rhythmic paddle motion. The weather was perfect, partly cloudy with a light breeze. The tide was in the process of going out. As Tami and I started out, the outgoing tide kind of helped us along. However on the return the tide was against us.

Before we set out I told Tami I would follow her because I was sure boaters were out and we would pass under a bridge where people sometimes fish. With my low vision I didn’t want to get entangled in someone’s fishing line or be someone’s “catch of the day”. I could hear her some with my old processor but couldn’t see her sign language. If I wanted to talk I’d extend my paddle and she would pull me over. When you have limitations like me, you have to come up with a system that works. Where there’s a will, there’s a way.

With the outgoing tide we found ourselves in some very shallow spots. At one point we got out and pulled the kayaks to deeper water before setting off again. Some of the boats got stuck until the tide rose again. Tides are tricky. You have to prepare carefully or you might get stuck or face paddling against it.

Truth be told, as I was paddling along my thoughts went to spiritual things. The end of Genesis 1:2 came to my mind, “…. And the Spirit of God was hovering over the face of the waters.” (NKJV) I feel so close to God in His beautiful creation. There isn’t the constant bombardment of distractions. Deep calls to deep and His voice abounds if we listen closely.

As I sit here reflecting, I sense some life lessons to pass along. Although paddling can be tiresome, if you get caught up in the wonder of the beauty it is so rewarding. Sometimes you need more than sight. A strong sense of direction will keep you going even when you can’t fully see what lies ahead. Have faith in the one who directs you. When we put our hope in Jesus He is going to see us safely through to our destination. In life we will occasionally get “stuck” and find ourselves going againt a strong current. At these times God brings people along to help us along the way. We all have strengths and weaknesses and we can use them to bless each other. Always pray for guidance before setting out. Our friend Leasa prayed for us before we set out.

I think I have discovered one of my potential favorite hobbies in kayaking. Someone gave us a two seater this Spring and I can’t wait to try it out. Hopefully my husband and some friends will enjoy it like me and be my eyes out on the water. We will see! Hopefully many more kayaking experiences are in my future. I’m so thankful for the life lessons learned along the way and sensitivity to God’s gentle whisper in His beautiful creation.

If you liked this blog post please subscribe and share. I’m thankful for this gift to share when God puts something on my heart. You can find my autobiography Rooted by the Water on Amazon. I pray it gives you great hope and courage to surrender to Jesus. He is all you really need. All for the Glory of God. Be blessed!

Www.shannonkhinson.com

The Missing Link

June 27, 20222 Comments

There is glorious light at the end of this struggle. Today I went back to my Audiologist for another mapping (programming) of my Advanced Bionics Marvel cochlear implant processor. The last several weeks have been quite an interesting challenge. After a week of a sound diet, having no auditory stimulation, followed by turning the processor back on to a low level; today she found the missing link. I had three electrodes that were turned off for some reason. My Audiologist tried turning them all back on but it was just one that made a big difference. Turning that one electrode back on brought a crispness back to sound. It no longer sounds muffled. She also turned the other two electrodes on and off while I listened to my husbands voice. I could understand him better with those two electrodes off. My nerves were able to tolerate the increase in sound without any eye twitching. I can’t begin to tell you how relieved I am. I am so so thankful to the Lord for His direction and wisdom. Ron and I have prayed throughout this process and family and friends have also prayed. It will take me some time to adjust to the new mapping but I’m all smiles! I can hear myself above the background noise so I know how loud to speak. I will have to get out in the environment to practice. If I learned anything this past time, I learned to ease into it. I will navigate this next stage with a more balanced approach. I am eager to explore sound and see what I can understand but I will not push myself too hard this time.

Thank you Lord for lessons learned. Thank you Lord for always being my anchor that holds me when troubled waters come along. Thank you for your promises that are new every morning.

We are considering looking into getting my other ear implanted. It is something that will require much prayer. It is an option to think and pray about. In the meantime, I will be working with what I have and trying my best to succeed with what God has given me. God is faithful always.

Never give up. It’s easy to get overwhelmed at times and changing coping methods is needed. However, giving up is not an option. It’s okay to take a step back, rest, refocus and ease into it again. There is help and support, you just have to be willing to accept it. You are never alone in the struggles! God is always right there with you as you lift up your voice in praise, thanksgiving and prayer. Help is on the way. It might not always look like you think it will. Putting your trust in God will see you through. God is faithful always! Let Him help you.

If you happen to come across this blog post for the first time. I encourage you to read my autobiography ”Rooted by the Water”. It’s a true story of how God has enabled me to overcome great difficulties, not by my own strength but through His strength made perfect in my weaknesses. You can find it on Amazon and many other online retailers such as Barnes & Noble, Books a Million, Target and Walmart.

Burnt-out

June 20, 20222 Comments

Today was a test for my nerves. Optimism and a positive outlook can get you places but at a certain point circumstances start to wear on you and you can begin to sputter out. That describes me perfectly today. This was not an unusual day. I woke up with the mindset to overcome just like I do everyday but by mid afternoon my nerves were shot.

June 10th was the start of my “sound diet” that lasted until June 16th. That was six days with no auditory stimulation. When my audiologist turned my cochlear implant processor back on that day I could only tolerate low levels. It’s like small steps forward with my brain adjusting to the sound levels. I’ve always had that “Can do” mindset but I feel all tuckered out. I’ve been adjusting to this new map (programming) for four days now. Life doesn’t stop but you push through. There’s been a funeral, wedding, Fathers Day celebration, church, dinners, grocery shopping, a walk with a friend, discussions etc. all while background noises are drowning out voices and I don’t hear how loud I’m talking. Yesterday I actually asked my husband if my face looked tired because I try to smile through it all. My facial muscles actually felt tired. Today I was just done. Having low vision makes lip reading a challenge and the current programming makes it difficult for me to comprehend. I finally just took it off today. Sometimes you have to listen to your body and let it unwind. I have seven days until my next appointment for another mapping / programming. God willing the next adjustment will be a God-send, with just the right adjustments that will lighten this load. I rarely complain. Complaining gets you no where in life. Prayer, praise and thanksgiving are the ways to victory. One prayer at a time.. one heartfelt song of praise at a time..stepping forward step by step, God leads the way. Took a good rest today but forward on I go.

Www.shannonkenleyhinson.com

Reactivation…baby steps

June 16, 20224 Comments

Today was the day I got to put my Marvel cochlear implant processor back on. It didn’t go exactly like I thought it would. It seemed more like baby stepping stones to take to get towards a goal of better hearing and comprehension of speech. I’m not even close to being there yet. However I went in hearing nothing and came out hearing a little bit so it is a step forward.

Describing this reprogramming eludes me. It was like starting from scratch. I’ve had my implant for 16 years. Since I started having some difficulties understanding speech my audiologist thought perhaps my auditory nerve was over stimulated. All my levels were high although not quite at the very top of the chart. It made sense to go on the “sound diet” so my nerves could rest. I think I went in with higher expectations than I should have. It was like starting back at the beginning, listening to various pitched beeps. They started very quiet and I had to tell her when it was at a comfortable volume. I was mindful of the fact my levels needed to be lower than before. It was super frustrating. As I sat there I started to sweat as I tried to put into words what it sounded like so she could make adjustments. My descriptions ranged from; it sounds like my head is in a tunnel, the microphones sound like they are covered, it’s muffled, volumes seems to go up and down with just a few words spoken. It was so odd.

My take away from today is it’s going to be a process. Progress requires one step at a time. My audiologist wants me to have a week for my brain to adjust to this new programming then I will go back for more changes. Step by step, God willing this will improve. My levels are about two thirds down which is good, we just need to figure out the next changes to make that will work for me. I did some auditory therapy tonight using the iAngel Sound app. I started with basics, food names and animal names. I could understand some of it but it was tricky. My score was down about twenty points from where I scored months ago. I will just need to readjust.

Here are a few reflections during this week and having sound turned back on. Silence is not golden. Not hearing separates you from people. When you have low vision like me, environmental sounds are important. Nothing makes your family work on their signing skills more than when they have to. 😂 Hearing no sound for a week makes you appreciate the little everyday sounds that are taken for granted. Rest is much easier without the noise. Prayer time has been different last week, not being able to really hear myself. I like to pray out loud in my quiet time. It helps me focus and I can speak Gods Word. When I speak the Word I like to hear what I’m saying.

I know things will get better. As the Audiologist was typing and programming, I was sitting there praying for God given direction and wisdom to make the exact changes I need. I go back in a little over a week for some more adjustments. Keep the prayers coming. Thanks for all the support. God bless you all!

Www.shannonkenleyhinson.com

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Are we done yet? I’m ready! Speed it up!

June 15, 20222 Comments

Sound off Days 4,5 & 6

Day 4
Today was pretty uneventful. I’m starting to get a little bit used to this. Silence is NOT golden but it is rather peaceful. Ron has been very helpful. I also saw Joshua and my mom today for the first time since the “sound diet” started. They both sign some so that was really helpful. I do miss the seemingly small and insignificant sounds that people take for granted. Four days down, two more to go but my appointment isn’t until Thursday afternoon. Thank you Lord for making this time go by fast.

Day 5
Today was a break from the usual. My friend Leasa and I went to the Carowinds waterpark. Leasa is deaf and we caught up by the wave pool, communicating through sign language. What a nice break from having to guess what’s being said. She always helps me with things I have trouble seeing as well. It was a day of fun and relaxing. Experiencing Carowinds sound free is quite different.

I have developed a rash around my eyes and on my neck that seems to be spreading. Most likely poison ivy. This has given me and Ron something else to talk about. He has been using the limited sign language that he knows and is being very helpful. Day 5 down with one and a half more to go.

Day 6

There is light or rather sound, at the end of this silent tunnel. Ron and I are both ready for me to have my processor turned back on. He was trying to tell me something this morning but he was signing ( sort of) the opposite of what he meant. After a few frustrating minutes he signed “thank God” then pointed to his ears and signed tomorrow. I took that as “Thank God you will have your processor back tomorrow“. God willing, things will sound much better and we can get my levels turned down and speech comprehension will improve. Keep praying!

Joshua stopped by today and is doing something with his Dad. He is finally signing instead of finger spelling so much. This is one of the silver liners in this experience. I love our son!

I can’t hear the doorbell and can barely hear Joy when she barks so I’m having to keep the front door opened ( but locked) because a friend is supposed to stop by to pick up something and I wouldn’t hear when she comes. I figured I would write this blog while I’m waiting.

Last night I had a strange dream. I dreamed I had been wearing my processor when I wasn’t supposed to be. Realizing my error I said, “ Oh crap I did it again.”. I think I’m more than ready to hear again as are those hearing people around me. Tomorrow…tomorrow… speed it up! I’m ready!

Www.shannonkenleyhinson.com

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Sound off days 1, 2 & 3

June 12, 20222 Comments

Day 1
We left the audiologist office laughing. I love a challenge and thought I’d approach this like a game. By this evening my nerves are in knots and I’m ready for “Calgon to take me away”! I will settle for Walmart brand bubble bath. Seriously there were so many times today I wanted to put my processor on! Thankfully it is electronically disabled (I think) so I’m stuck. Life still happens and there are still discussions to have but the communication process is currently broken. Ron has been talking as usual. I can’t blame him as we’ve been doing life as usual for 28 married years. I have to remind myself to take a deep breath and don’t snap. Show grace Shannon!

I received an encouraging email today from my Teacups ministry sister Ronnee. She encouraged me to look at it like a silent retreat with the Lord. What a neat perspective on this current challenge. I’m shifting my focus here. Ok Lord without the sense of physical hearing this week let me be keenly aware of spiritual hearing and grasp all You desire to show me and free me from. Day one down, five more to go. Now for that bubble bath! Good night!

Day 2
This morning when I woke up I went straight to where I keep my cochlear Implant processor but remembered it’s off limits. Putting my processor on each morning is the first thing I’ve done for sixteen years. Ron had a day trip planned so me and our dog Joy had the house to ourselves. After a long quiet time with the Lord, I got some chores done. I can’t tell you how many times I wanted to put my processor on. Silence is somewhat disorienting. On an odd note, my balance seemed better today but I was tired by the time I went to sleep. I depend so heavily on my processor and with it off I’m having to depend on the vision I have. With 20/400 vision, I guess I’m milking my optic nerves for every stimulation available. 😳🤣Two days down, four more to go.

Day 3
As the saying goes, “Habits die hard”. This morning when my alarm went off again I picked up my processor to put it on. I was half asleep and the place I keep it at night is close to the bed. After this, I had to pack it away in its case so it’s not easily in reach. It’s in its case and put away for my next appointment with my Audi on Thursday afternoon.

I considered whether I would go to church or not. There is always an interpreter so that wasn’t my concern. Not hearing the environmental noises is so odd and uncomfortable but I knew God would meet me there. It was the most “silent” church service I’ve ever attended. 😂 I know emojis are not for writing but I’m inserting one to keep the humor alive. I’m so thankful for my friend Lauren who interpreted the service for me. It was nice to be able to communicate with someone without all the guessing of lip reading without audio clues. I could feel the beat to the music, probably due to Terry being on the Bass. I also heard Pastor’s voice slightly when he was all fired up. It was a powerful message. I’m thankful I got out of my comfort zone and went. There is blessing in obedience. Depending on all the visuals with low vision wore me out again. A good nap was calling my name when I got home.

Tonight when I go to sleep I will be half way finished with this”sound diet”. While I’m keeping a positive perspective, it’s not really like a silent retreat. I have been on those before and they lasted a couple of days with no talking and no devices, it was just one on one time with the Lord. Worship music and sounds of nature always connect me with God. Right now things are utterly silent. A bit unnerving but I’m half way through.

Lord speak in this silence and renew my nerves so I can comprehend speech better again. With my CI packed away for my next appointment, there won’t be the temptation of the habit of putting it on. Please keep the prayers coming.

Www.shannonkenleyhinson.com

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Sound off…Sound diet… Uumm okay

June 10, 2022Leave a Comment

Today at my audiologist appointment instead of a sound adjustment or programming changes to my cochlear implant processor, my processor was turned off. I’ve been having new issues with speech comprehension and we aren’t sure why. After testing my new (6 month old) cochlear implant processor and finding nothing wrong with it, we are taking a different approach. My program levels are pretty high which could possibly be overstimulating my auditory nerve. My audiologist suggest a “sound diet” for a week, meaning I won’t wear my processor at all. She even turned it off electronically so I don’t cheat.

This is going to be a real challenge because I am also legally blind. When I wake up in the morning the first thing I do is put on my cochlear implant processor and when I go to sleep at night, taking it off is the last thing I do. I depend on it for environmental sounds. So this is definitely going to be a challenge but I’ve always been up for a good challenge.

Having a positive perspective is more than half the fight. As we talked with the audiologist we asked if we could pray with her. God given wisdom is a must and we are trusting God for a good outcome, so we prayed together in her offic. Afterwards I turned to my husband and told him he better brush up on his signing skills this week. I also jokingly told my Audi I might end up thanking her next week because Ron is a talker. I’m always listening and trying to figure out what he is saying. Right before the processor was turned off Ron said to me “Bye”. I texted our son later and explained what was going on. He said, “Everything will work out fine and you might just enjoy it.” I remember writing in my book “Sound is nice but silence is golden.” I wonder if I will say that at the end of next week. Prayers appreciated. Ron might need them even more than me. This will be a test of patience. I guess this blog will be continued…..

If you’d like to read more of my story please check out my autobiography “Rooted by the Water”. It’s a true story of how God has enabled me to overcome great difficulties, not by my own strength but through His strength made perfect in my weaknesses. You can find it on Amazon and many other ponline retailers such as Barnes & Noble, Books a Million, Target and Walmart.

Www.shannonkenleyhinson.com

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