Reactivation…baby steps


Today was the day I got to put my Marvel cochlear implant processor back on. It didn’t go exactly like I thought it would. It seemed more like baby stepping stones to take to get towards a goal of better hearing and comprehension of speech. I’m not even close to being there yet. However I went in hearing nothing and came out hearing a little bit so it is a step forward.

Describing this reprogramming eludes me. It was like starting from scratch. I’ve had my implant for 16 years. Since I started having some difficulties understanding speech my audiologist thought perhaps my auditory nerve was over stimulated. All my levels were high although not quite at the very top of the chart. It made sense to go on the “sound diet” so my nerves could rest. I think I went in with higher expectations than I should have. It was like starting back at the beginning, listening to various pitched beeps. They started very quiet and I had to tell her when it was at a comfortable volume. I was mindful of the fact my levels needed to be lower than before. It was super frustrating. As I sat there I started to sweat as I tried to put into words what it sounded like so she could make adjustments. My descriptions ranged from; it sounds like my head is in a tunnel, the microphones sound like they are covered, it’s muffled, volumes seems to go up and down with just a few words spoken. It was so odd.

My take away from today is it’s going to be a process. Progress requires one step at a time. My audiologist wants me to have a week for my brain to adjust to this new programming then I will go back for more changes. Step by step, God willing this will improve. My levels are about two thirds down which is good, we just need to figure out the next changes to make that will work for me. I did some auditory therapy tonight using the iAngel Sound app. I started with basics, food names and animal names. I could understand some of it but it was tricky. My score was down about twenty points from where I scored months ago. I will just need to readjust.

Here are a few reflections during this week and having sound turned back on. Silence is not golden. Not hearing separates you from people. When you have low vision like me, environmental sounds are important. Nothing makes your family work on their signing skills more than when they have to. 😂 Hearing no sound for a week makes you appreciate the little everyday sounds that are taken for granted. Rest is much easier without the noise. Prayer time has been different last week, not being able to really hear myself. I like to pray out loud in my quiet time. It helps me focus and I can speak Gods Word. When I speak the Word I like to hear what I’m saying.

I know things will get better. As the Audiologist was typing and programming, I was sitting there praying for God given direction and wisdom to make the exact changes I need. I go back in a little over a week for some more adjustments. Keep the prayers coming. Thanks for all the support. God bless you all!

If you happen to come across this blog post for the first time. I encourage you to read my autobiography ”Rooted by the Water”. It’s a true story of how God has enabled me to overcome great difficulties, not by my own strength but through His strength made perfect in my weaknesses. You can find it on Amazon and many other online retailers such as Barnes & Noble, Books a Million, Target and Walmart.

Www.shannonkenleyhinson.com

IAngel sound app

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Thankfulness

Porch time with Joy

As I sit on the back porch this Memorial Day morning I’m thankful. I’m thankful for the freedom to sit here with my dog Joy and listen to the birds singing. I’m thankful for the brave men and women who serve our country and for those who gave it all for our freedom. I’m thankful for Jesus who renews our hope each day.

Yesterday at church I was reminded to offer up sacrifices of praise to God, even in the waiting and frustrations of life. Lord let me always be mindful to PRAISE YOU anyway!

Lately I have felt so weighed down by life, the world, issues with my “state of the art” cochlear implant processor. As the list of concerns goes on, I can find myself overwhelmed. But yesterday at church as I listened with tears rolling down my face, I was reminded to be thankful in the waiting period even though it seems I’m always in a waiting period. All I can do is pray, praise and trust God to move. Our country, our world, society at large is so broken because it rejects Jesus. I can’t do anything about it but pray and allow God to use me in whatever way he desires to bring about healing in our world. Let’s pause today and be thankful. Let’s pray continually and give thanks because our God is faithful.

If you’d like to read more of my story please check out my autobiography “Rooted by the Water”. It’s a true story of how God has enabled me to overcome great difficulties, not by my own strength but through His strength made perfect in my weaknesses. You can find it on Amazon and many other online retailers such as Barnes & Noble, Books a Million, Target and Walmart.

Www.shannonkenleyhinson.com

Picture found on Truth Social App

TikTok anybody?

I can hear it now, “Surely she’s not going to write on this subject”. I surely will and ask you to hear me out. Please keep reading.

Last May when my autobiography “Rooted by the Water” came out my publisher suggested promoting on social media platforms. In the process of doing this I have discovered some writers groups. One of these groups has amazing suggestions of how other self published authors successfully promote their books. It was there I found out about Booktok which is a part of TikTok.

When I first considered different options for promoting I saw how very expensive hiring a professional publicist and marketing pro can be. The beauty of Tiktok is that it’s free promotion but you have to do the work and learn the system. Doing this with low vision is so time consuming!

The thought of TikTok itself was so intimidating because as someone who does not watch tv I can be easily blown away by things people post. I’ve never seen such vanity and cries for “look at me!” I’m like, “You people need to cover up! My goodness! Know your worth!” It’s an understatement that I was shocked at what some people post but I learned how the system works and would quickly scroll on past the offensive ones.

As I learned, I found the “discover” section where you can search what you’re looking for. I search for Booktok, Christian TikTok, true story, Christian Booktok, deaf blind and many more. As I typed these things in to search, great videos came up of Christian books, people sharing devotions, words of encouragement, worship music, nature and more. Therein lies the beauty. The videos are very very short and repetitive, so if I don’t understand it I just listen again. I began to realize it’s a great auditory therapy resource for practicing with my Advanced Bionics Marvel cochlear implant processor . I just make sure what I’m listening to is something I want to keep hearing and not offensive.

Actually creating the videos is a whole different story. It took me years to accept my limitations with hearing and vision issues. It took many more years to admit them and be open to help from people. Then God put on my heart to put my story in writing to encourage others and give glory to His name. Writing my book took me two years and many tears. When my book released last May, I thought “Whew! I’m done!”. Little did I know it was the beginning. What I had hidden for so long, finally accepted and finally put into writing…. people were now reading. Talking about being uncomfortable! Making videos to promote the book takes that discomfort to a whole new level. I am not about promoting me but I will promote what Jesus is to me and how He helps me. As I try to come up with content for videos I see I can use this tool to encourage others to look to Jesus which is my purpose. It’s not about writing blogs, making videos, and selling books but rather opportunities to share Jesus!

If you are on TikTok look for me and follow me @shannonkenleyhinson and I will point you to the best thing ever, Jesus my Lord! You can find my book, “Rooted by the Water” on Amazon and other online retailers. You will laugh, you will cry, and more than likely shake your head in disbelief. It’s transparent and I give God all the glory.

http://www.shannonkenleyhinson.com